Here’s the reccap thus far. in January I started to feel sick with extreme nausea and i was quite fatiqued. My primary doc did blookwork and my kidney levels were a 7 (normal is under 1); this is dialysis level. After 2 more tests and a catscan i was told to go into hospital and it was revealed i had a mass in my abdomen which was blocking my ureters, thus preventing my kidneys from draining properly.
Docs wanted to do a biopsy, but couldn’t until my kidneys levels were low enough b/c a biopsy involved getting contrast. The kidneys needs to be able to handle the contrast and couldn’t where they were at. So, the urologist put in two sets of stents, but neither works to drain the kidneys, so then an internetional readiologist put in nephrostomy tubes that come right out of the kidneys, thru the back and drain into bags that are attached to my legs. It took 17 days, but the levels were down far enough to do the biopsy.
The results showed I had non-hodgkins lymphoma (NHL), but not the full sub cell of the cancer so I eventually went to Sloan Kettering in NYC to get another biopsy. The final pathology states non0hodkins lymphoma, foliicular division, stage 2, grades 1, 2, 3A. Grades 1 and 2 indicate an indolent or slow moving cancer while 3A indicates a more agressvie cancer. The latter is curable but the former aren’t per se. The get be eradicated from the body but there is more a chance of their returning. However, I’ve spoken with ppl who’ve had that and it’s never returned.
Incidentally, NHL is what took my mom but she had a different sub-cell. And honestly, this really hasn’t been on my mind, b/c (and I don’t often like saying I know exactly what God’s plan was b/c it’s hard to really know), I believe it was her time, truly, even though she wwas only 70. I can’t imagine if she had to live with mehaving cancer. Apparently, I could have had this in my body upwards of 5 years.
On March 8, I had my first round of chemo (called RCHOP). Reax were ok. I got thrush for a few days, but the worst reax came from the neulasta shot which is given the day after chemo. It is deisgned to force your bone marrow to create more white blood cells since the chemo basically kills all yours. The result is intense bone pain, indescribable. It’s like muscle soreness below your muscles. I couldn’t walk for 3 days.
I’ve had a couple ER trips, one for high grade fever, common, and one for a potential bone clot which turned out to be an inflamed lymphnode which made is harder to breathe, again common. AS a result of checking for a clot, they did a catscan and saw the mass had shrunk a little, about .5cm on one side. THe total mass size is about 7x5cm.
Next round is next Friday. I go every 3 weeks for a total of 6 rounds. I still have teh tubes in; maybe they can come out after a few treatments. I thank everyone for all the prays, food, rides etc. God will bless you and Lex and I are praying He will b/c you have blessed us.